Tributes

Natalia Ichaso Jimenez

We owe a debt of gratitude to Natalia Ichaso Jimenez, President of the Manuela Martinez Foundation and Dra. Martinez’s close friend and assistant, who worked diligently with outstanding dedication and commitment to our families following the death of Dra. Martinez to provide an uninterrupted source of the DHA-EE for our children as long as possible. By her efforts each of our families recovered medical records and solved many of the overwhelming issues which faced us.  Natalia, we can never, never forget you and what you have done for our children.

natalia

Bizen Chemicals and Select Supplements

The children’s families thank the companies, Bizen Chemicals of Japan and Select Supplements of Carlsbad, California, who have made it possible for the children to continue DHA-EE treatment after Dra. Martinez passed away.  Each family has shared with them the difference the DHA-EE made in their child’s life.

A Special Thanks

CBADD and CCHMC

Appreciation must be also expressed to the Counsel for Bile Acid Diseases (CBADD), specifically Arnie Tunis for his relentless encouragement and commanding involvement to reach out to the parents of children with bile acid deficiency diseases.  Likewise, recognition must be given to Dr. Kenneth Setchell and Dr. James Heubi of the Cincinnati Children’s Hospital Medical Center for their life-long sacrifices and contagious joy that have inspired us to catch the vision so that the next generation might carry a lighter burden. We would not be where we are without you!

Asklepion Pharmaceuticals

An acknowledgement of Mr. Gary Pyner, Chief Commercial Officer of Asklepion Pharmaceuticals, must be voiced for his motivating inspiration and invincible drive to make our children’s lives be of value.  His example is something we desire to emulate.

Website

A big thank you to Joseph S. Wulf who has designed and created this website to further the reach and impact of research for children with Peroxisomal Biogenesis Disorders (Zellweger’s Syndrome).

FDA

We were moved with deep gratitude for the opportunity the FDA, Division of Gastroenterology & Inborn Error Products, extended to us to hear our children’s stories September 29, 2014, and for their interest in treatment for the next generation.  A special thanks also to Dr. Philip Rosenthal, Professor of Pediatrics and Surgery, Director, Pediatric Hepatolotgy, University of California, San Francisco, and James Valentien, J.D., M.H.S., Associate, Hyman, Phelps & McNamara, P.C., for their invaluable presence and contributions.  Thank you again, Mr. Arnie Tunis for your dedication to us!

Brain Restoration Clinic

Once in a life time there comes across our path someone who changes the course of the future and embraces parents with energetic support and encouragement.  Jean-Ronel Corbier, MD, Pediatric Neurologist, has recognized the importance and value of Dra. Martinez’ work with Zellweger Syndrome Disorder and has committed to carrying it forward.  There is not a more dedicated doctor to genuinely thank for his extraordinary kindness and courage.  Like Dra. Martinez’ personal sacrifice and devotion to our children, Dr. Corbier stands out today as a giant man serving children with neurological disorders.