Posts made in November, 2015

Precision in Zellweger’s Syndrome

We cannot but speak of the things we have lived and experienced. The children with Zellweger’s Syndrome or Peroxisomal Biogenesis Disorders who have been treated with 97% pure DHA-EE (docosahexanoic acid-ethyl ester) offer a ray of hope to others bearing the same diagnosis. Zellweger’s Syndrome is a disease of deficiencies, and DHA deficiency occurs in most children diagnosed with Zellweger’s Syndrome (Peroxisomal Biogenesis Disorders). Correction of this one deficiency proves to be a measure to help our children live as best as they can under its crippling burden while...

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